Agreeing Needs, Making a Formal Record and Next Steps (Carer's Transition)

1. Agreeing Needs

Agreeing needs through the skilled conversation

Throughout the process of information gathering to establish needs you should talk to the parent carer/young carer and anyone else involved in the assessment about the level of current and likely future need apparent, endeavouring to reach an agreement about this as the process progresses.

The responsibility for agreeing needs

Whether or not an agreement about needs is reached, the Local Authority is responsible for making the final decision about the level of current and likely future need that a parent carer/young carer has. As such this is your responsibility as you are the Local Authority's representative.

Considerations when agreeing the needs of parent carers

When determining the level of need you must give regard to:

  1. The views of the parent carer about the level of need;
  2. The impact of the need on the parent carer's Wellbeing; and
  3. The views of anyone else consulted or involved in the assessment process.

Considerations when agreeing the needs of young carers

When determining the level of need you must give regard to:

  1. The views of the young carer about the level of current and likely future need;
  2. The views of any parents involved in the assessment;
  3. The views of anyone else with parental responsibility about the level of current and likely future need;
  4. The impact of the current need on the young person's Wellbeing;
  5. The impact of likely future needs on the young person's Wellbeing; and
  6. The views of anyone else consulted or involved in the assessment process.

In all cases

The decision that you make about the level of need must be evidence based and robust. This means you must be able to demonstrate the information that you have used to reach a decision about need if challenged.

The decision you reach may be in line with the views of the parent carer/young carer (and others) but equally it may not be if the evidence does not support that judgement. This is appropriate as long as you have a clear rationale for your decision and have given regard to:

  1. The parent carer/young carer's views;
  2. The parent carer/young carer's Wellbeing;
  3. Where the young carer is under 18, the views of anyone with parental responsibility;
  4. Where the young carer is under 16, any parents (with or without parental responsibility); and
  5. The views of others involved in the assessment.
Example:
Jane is of the view that she is not able to mobilise around her home and needs full support. Her Occupational Therapist has provided Jane with a range of aids that she can use to stabilise herself around her home and you have seen Jane use them effectively. When determining the level of need you make a decision that Jane is able to mobilise around her home with the support of aids because you know this to be true, even though it does not reflect Jane's own views.
Example:
Annie tells you that she has no difficulty maintaining relationships with her family. However during the assessment you saw several ABC behaviour records that evidenced as a result of her mental health illness Annie become verbally angry with her parents several times a month, with her advocate regularly liaising between them afterwards to help de-escalate the situation. When determining the level of need you make a decision that Annie can behave in ways that her parents find challenging and has the need for regular support to maintain the relationships with her parents, and without this there is evidence that the relationship could break down.

If you are unclear about the level of need a parent carer/young carer has you should consider the benefit in gathering any additional information or consulting with any other person. If you remain unclear about the level of need you should seek advice from your line manager about how best to proceed.

2. Managing Disagreement about the Level of Need

There may be times when the parent carer/young carer, or anyone else involved in the assessment disagrees with the decision you have made about the level of need the parent carer/young carer has.

In this situation you should be open to reviewing the available evidence and your rationale to ensure that the decision you have made is robust. You should be open and transparent about the evidence sources you have used and take steps to try and support the parent carer/ young carer (and their parents) to understand the decision you have made.

Where ongoing disagreement persists you should:

  1. Seek the support and advice of your line manager as required;
  2. Make a record of any difference of opinion in the formal record of assessment;
  3. Ensure the evidence upon which you have based your decision is robust;
  4. Make sure that the regard you have given to the views of the parent carer/young carer (and others) and the impact on their Wellbeing is clear; and
  5. Make proportionate records of any conversations you have had to try and resolve the differences.

You must also make the parent carer/young carer (and their parents) aware of their right to complain about the decision that has been made.

3. Making a Formal Record of Needs

You are responsible for establishing the current assessment framework used by the Local Authority for recording a young carer's assessment or a child's carer's assessment. If you are unclear you should speak to your line manager before proceeding to make a formal record of the assessment.

The timeframe for making a record

All recording should be made in line with local requirements.

See: Adult Services Case Recording Guidance.

The Care Act does not specify a timeframe for making a formal record of a carer's transition only that this should be done in a timely way.

Timely recording will:

  1. Reduce the likelihood of inaccuracies;
  2. Prevent any unnecessary delays for the carer/young carer;
  3. Support the timely development of any transition plan; and
  4. Ensure that any current identified needs can be met as soon as possible.

If the timeframe for assessment that you use leads to inaccuracies or a delay in meeting needs then it is not timely.

What should be included in the record

The following information must be clearly recorded in all cases:

  1. The identified areas of need that the parent carer/young carer has now;
  2. In a young carer's assessment; the identified areas of need that the young carer is likely to have when they become 18 (using the Care Act needs domains);
  3. In a child's carer's assessment; the identified areas of need that the parent carer is likely to have when the young person they care for becomes 18 (using the Care Act needs domains);
  4. The nature of needs that the parent carer/young carer has in each area where needs exist;
  5. The views of the parent carer/young carer and any other person (including anyone with parental responsibility when the young carer is under 18) in relation to need now and in the future (and how these have been regarded);
  6. The views of the parent carer/young carer and any other person in relation to how current need impact on Wellbeing (and how these have been regarded);
  7. The views of the parent carer/young carer and any other person in relation to how likely future needs will impact on Wellbeing);
  8. The evidence that has been used to reach a determination about the level of current and likely future need;
  9. How the impact of the decision on Wellbeing both now and in the future has been considered;
  10. A proportionate record of the options explored to meet current needs and achieve outcomes, clearly demonstrating a strengths based approach;
  11. A proportionate record of the information given about the ways that adult Care and Support may be able to meet likely future needs and achieve outcomes, clearly demonstrating a strengths based approach;
  12. A proportionate record of conversations about risk, clearly demonstrating a positive approach to risk;
  13. A proportionate record of any general information and advice that has been given about the transition process and adult Care and Support;
  14. A proportionate record of the preventive measures that have been explored; and
  15. A proportionate record of any actions and next steps agreed (for example transition planning or arranging for any current support needs to be met through children's services)

The following information should also be clearly recorded where relevant:

  1. The safeguarding concerns raised and action taken;
  2. The Deprivation of Liberty concerns raised and action taken;
  3. A proportionate record of specific information and advice given (for example around finances or Lasting Power of Attorneys);
  4. The evidence that has been used to demonstrate the level of fluctuating need; and
  5. Any difference in views about need that have occurred.

Providing a copy to the parent carer/young carer

Following the assessment process the parent carer/young carer must be given a written record of their assessment.

It is important that the parent carer/young carer understands their assessment and the outcome of it. To this end it should be provided in a format that is accessible to them.

If the assessment has been provided in a format that you know or suspect the parent carer/young carer will not be able to understand you should:

  1. Consider any steps that you can take to support them to understand it (for example summarising it in a simpler format); and
  2. Consider the duty to make an Independent Advocate available.

If an advocate is already involved they should be informed when the assessment has been provided to the parent carer/young carer so that they can support them to understand it.

Providing a copy to others

In all cases whenever a young carer's assessment has been carried out a copy must be provided to the young person's parents.

Where the assessment was carried out jointly with another organisation to avoid duplication (for example housing or health) a copy of the assessment must be made available to the other person that carried it out with you.

A copy of the record can only be shared with anyone else with:

  1. The parent carer/young carer's consent; or
  2. In the case of young carers, the consent of a person with parental responsibility if they are unable to consent and under 16; or
  3. In the case of young carers, a Local Authority best interest decision if they are unable to consent and over 16.

A copy must also be shared with anyone that the parent carer/young carer requests you share a copy with, even if they were not involved in the assessment itself.

Concerns about a request

Sometimes the parent carer/young carer will request a copy of the assessment is provided to a person who was not involved in the process. You must provide a copy of the assessment to anyone that the parent carer/young carer requests you to unless:

  1. They are over 16, lack capacity and you make a decision that sharing would not be in their best interests;
  2. They are under 16, lack competence and a person with parental responsibility does not consent; or
  3. You are concerned that doing so could put the young carer or cared for person (or another vulnerable adult or child) at risk of abuse or neglect.

If this situation arises you should seek advice from your line manager and decide whether:

  1. To share the record in full as requested;
  2. To share the record partially, omitting sections where information could put the young person at risk; or
  3. To decline to provide a copy of the record (although the parent carer/young carer can of course still choose to make a copy available from their own record).

Amending a record of need

Sometimes the parent carer/young carer (or their parents) may ask for amendments to be made to the assessment. For example:

  1. They feel that there is information missing; or
  2. They feel that the record is a misinterpretation of something that was said or agreed.

In this case you should:

  1. Consider the request;
  2. If the parent carer/young carer did not make the request consult with them;
  3. In the case of young carers under the age of 16, consult with their parents;
  4. In the case of young carers over the age of 16, consult with anyone with parental responsibility; and
  5. Review any evidence or information you have which may support or refute the request.

You should not make the amendment regardless of the existence of evidence and a rationale for doing so. If you reach a decision not to amend the record you should be clear about your reasons for not doing so, and you should make the carer/young carer aware of their right to complain about your decision.

If a decision is made to make the amendments you should proceed to do so. Where doing so results in 2 versions of the same assessment being available on the system it must be clear which the amended version is.

The amended record should be circulated to the same people as the original record, unless the parent carer/young carer requests otherwise or there is evidence that doing so would put a vulnerable adult or child at risk of harm or abuse.

4. Next Steps

When a carer's transition assessment has been completed, agreed and recorded you should consider with the parent carer/ young carer and others involved in the assessment how best to use the information gathered during assessment to develop an effective plan to support the parent carer/young carer through transition (whether this is likely to include an adult carer's assessment or not).

Click here to access the procedures for transition planning.

Adult carer's eligibility criteria should not be applied following a carer's transition assessment because there is no duty for any needs to be met by adult Care and Support until:

  1. The young carer is 18; or
  2. The person being cared for by an adult carer becomes 18.
If the carer's transition assessment has identified that the parent carer/young carer has one or more unmet current need it is the legal responsibility of children's services to meet those needs under the relevant children's legislation (the Children Act 1989 or the Children and Families Act 2014).